I Was Misdiagnosed For Almost A Decade: A Mental Health Journey

Illustration of a woman with short hair, from the torso up. Her face is replaced with a question mark.

Before we begin, a confession: I am an idiot.

When it comes to mental health and wellness, I was a rookie when they first diagnosed me with Borderline Personality Disorder. My parents were vocal in their distrust of psychology, seeing it as an excuse to wallow in your trauma instead of solving it.

Regardless of their prejudices, they encouraged me to go to a psychologist to figure out why I was so hell-bent on self-destruction. Their hope was that I was “normal” but had been derailed because of the zesty combination of hormones and a failure in however the other divorced parent had raised me. The reality was more that I was a teenager with undiagnosed ADHD and unresolved ✨ trauma ✨. Not that we knew at the time.

Because of this, I accepted the diagnosis given to me and dropped out of therapy a couple months in, deciding I could sort it out myself. This was the start of a mental health journey that has erred more on the side of free-climbing the Matterhorn during a snowstorm than a casual stroll through the forest.

The misdiagnosis ended up doing more harm than my ADHD symptoms, even exacerbating them. I was putting a cast on my arm, when it was my leg that was broken. In the end, I ended up with a numb arm and my leg still in pain.

I started therapy and medication for ADHD expecting it not to work. It did work. Almost too well. Because now I’m stuck with an endless conga line of “what-if’s” dancing through my brain.

BPD vs ADHD: how did they get these confused?

Before we begin, let’s answer the big one: how did Borderline Personality Disorder (BPD) and Attention Deficit Hyperactivity Disorder (ADHD) get confused for one another?

BPD is a cluster B personality disorder that is characterized by an inability to regulate intense emotions. This inability can result in high levels of impulsivity, a propensity towards self-destructive behaviors in an effort to cope, and emotional outbursts. ADHD, on the other hand, is a neurological condition that affects attention regulation, hyperactivity, and executive function. When untreated, ADHD can be expressed as impulsivity, a propensity towards self-destructive behaviors in an effort to cope, and emotional outbursts.

ADHD is genetic and has to be present before the age of 12 to be diagnosed, while BPD can be genetic, environmental, or both.

Gender plays an inadvertent role in diagnosis. Women are more likely to be diagnosed with BPD than men, just as men are more likely to be diagnosed with ADHD than women. Women tend to receive an ADHD diagnosis much later in life, and to be misdiagnosed in the first place. And yes, BPD is a common misdiagnosis in these cases.

These are the facts.

But the facts don’t fully encompass the frustration of living with the wrong diagnosis for so long, and the amount of doubt it brings. Here are the questions I’ve grappled with, and am still grappling with, because of it.

Am I a fraud? Did they get it right this time?

Being told that it looked like my BPD was ADHD in disguise was a turning point. After months, I’d been validated in my suspicions and could breathe a sigh of relief.

Until I thought about it for too long and convinced myself that I’d been faking every symptom the entire 6-month long process of getting diagnosed.

That fear that they’ve gotten it wrong again is a consistent nag in the back of my mind. Writing about ADHD this month has let me organize my thoughts when it comes to my own experiences in the context of a new(ish) diagnosis. This doesn’t mean that there are no doubts. What if I’m sharing all these thoughts and experiences and it’s something else? Am I misleading people? Am I just trying to convince myself that I actually have it?

When I start thinking that, I run through the same list every time:

  • When I talk to other people with ADHD, I finally feel heard and understood for the first time in my life.
  • Following ADHD-specific advice works, which didn’t happen when I’d follow BPD-specific advice.
  • Caffeine doesn’t make me hyper, it calms me down.
  • My medication does not hype me up and makes my brain much more quiet and subdued, to the point I can relax. Which is nice. And not what happens if you take it without having ADHD.

Still, the level of self-skepticism borders on exhausting and I’d wish my Impostor Syndrome didn’t extend to my mental health, too.

Why did I have to be so stubborn and not believe my close family and friends? Was I dumb in just accepting the diagnosis?

They say that the more someone is entrenched in a belief, the more they will dig in their heels once opposing evidence is presented. I am guilty of this.

In my attempt to get better, I’d shared BPD resources with my close friends and family. I was trying to avoid the unhealthy interpersonal relationship dynamics I’d been warned were inevitable. Disregarding the fact that I’d had no issues whatsoever with these friends and family, I felt they needed to be prepared.

Almost every single one of them were kind enough to take the time to read these resources. They were also kind enough to let me know that they did not see me in what they were reading.

I’d equivocated not believing in my borderline as not believing there was any mental illness. Denying my BPD felt like a denial of my mental struggle. And the struggle was undeniable. Had I listened, I would have heard they were aware I needed help, but that I was looking for it in the wrong places.

Lesson now learned: if the people who know you best are telling you that your perception of self is way off-base, it’s probably (definitely) way off-base.

I kept re-traumatizing myself for nothing?

BPD can be brought upon by trauma. Because of this, trauma is explored when treating Borderline Personality Disorder, to recognize and change negative trauma-related behaviors or attitudes. In my misguided attempt at self-improvement, I gave too much weight to traumatic experiences that did not need constant reliving.

Making judgements on my actions through the lense of trauma was overwhelming. I thought I’d never be able to get over that period in my life because it had affected me to the point of changing my personality. It permeated everything. I saw traces of it in the ways I thought or interacted with people.

It was inescapable.

Aaaaand it was a pointless mental prison I’d built for myself. It turns out that the keys to the prison were in my back pocket this whole time. I just didn’t know where to look.

Did I cause unnecessary damage by trying to control parts of me that were never there?

My interaction with the psychologist who diagnosed me with BPD was not an entirely positive one. After concluding that I had borderline, he admitted that his borderline patients were his most difficult to treat. He also mentioned that a lot of literature I would find would be about how other people deal with people with BPD, because we could be considered toxic and manipulative.

Overall, not a great start.

From there, I started treating myself like I was a menace to be around, self-isolating from people who just wanted to be closer to me. I pushed myself away and tried to make myself invulnerable and independent. My usual route of learning through reading was also not proving fruitful. A lot of what I’d found was confirming that being around someone with BPD was considered worse than suffering from it.

Adding to the loneliness? I felt alienated from both the BPDers and from so-called neurotypicals. If I tried to share experiences with either, neither group found them relatable, driving me deeper into isolation.

Everything I tried to do to make myself better only turned out to push me further into believing I was a scourge to society if I didn’t learn how to control my emotions.

Which made me more emotional.

Even though that wasn’t even the problem in the first place.

When my group therapy sessions for ADHD ended, the clinic offered individual sessions for problems not addressed in therapy. I spent more time in those individual sessions talking about how much damage the misdiagnosis did, than on my ADHD-related symptoms.

The misdiagnosis had twisted the way I viewed my ADHD symptoms into something untreatable and unmanageable. It also added to my low self esteem, because everything I tried to solve it did not work. I’m happy to see the level of improvement in less than a year by getting the right help. Although, I’m still bitter.

I just wish they would have been as thorough with my borderline diagnosis as they had been with my ADHD diagnosis. My ADHD diagnosis took me almost half a year to get, involving multiple interviews, including interviews with parents, questionnaires, and even then, it took some convincing after they almost threw the whole diagnosis out because I didn’t struggle in school. My BPD diagnosis was based on a hunch after just one intake session, where I only introduced myself, plus one questionnaire. It took about two weeks. Max.

At least they got it right this time, right?

For ADHD Awareness Month, I’ve decided to share my personal journey with ADHD, because ADHD can look different from person to person. So, DISCLAIMER: some of these experiences may resonate because to an extent, a lot of them happen to most people. The biggest difference is the extreme to which these symptoms affect ADHD’ers life adversely. If you think you might have ADHD, please contact your doctor or mental health professional.

Like what you see? I post a new blog every Sunday/Monday where I talk about… whatever THOUGHT interests me that week. Expect a bit of books, travel, beauty, and taking pop culture way too seriously.

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